We all began this journey into motherhood the same as every other mother does; we found out we were going to be blessed with a baby. It is written on our memories and in our hearts and we can all still recall when and how we found out. This was either going to be our first child, or an addition to our growing family. Either way, it there was a miracle growing inside of us and the joyous thought of having a new baby brought a new life to our hearts that we held dear. We planned and prepared and rearranged our lives to bring this new miracle into our home.
We all began the next journey of motherhood, that is of special motherhood, in many different ways. Some of us knew before birth, some of us knew at birth and some of us were able to enjoy days, months, even years of thinking that our child was just like everyone else’s; just a happy kid without any needs or differences. At some point between being a mother and being a special mother, we found out the truth. The truth that something about our child was a bit different. We all remember the day we became special mothers.
Being a special mother doesn’t make us special, as a matter of fact, it can make us go into many different phases of being. We’ve all been through this together and yet we barely know each other. We’ve spent countless hours wondering and worrying, researching and asking questions and finding specialist after specialist to give us answers. This is what we do behind closed doors, or at least what most of the world doesn’t see. We still have to be wives, sisters, friends, and a mother to our other children or an aunt to our sibling’s kids or act like a parent with our friends kids. We still have to have a career or attend school and take care of a household or do all of it at once. We still have to keep ourselves together to the outer world and find a safe haven to crumble when we need too. We have to keep digging and finding answers for our children and loving them and protecting them and raising them in the best way we know without any direction, because we are forging a path for future generations.
God gave us these amazing children to teach the world about 4H syndrome, He taught us the word Leukodystrophy and we are summoned to become teachers to the rest of the world. Yes, we now have another job to do and that is to educate the world on how amazing, strong, resilient, smart, funny and special our children are and we have to face the unknown with a certainty that our special kids will forever be the pioneers into this vast unknown world that they all share. Our special children are all genetically family and that makes us family and that means we were all brought together, from every corner of the earth to go through this life together.
Today is not only Mother’s Day, it is a time to rejoice in knowing we are all in this together and no question, no answer, no wonder, no rant, no tears or sorrow will be left to us to endure on our own. We can celebrate this special day together knowing that special kids need very special moms and although we are all from very different lives, we all have one thing in common. We will raise the bar of expectations on our kids and challenge the smartest specialists in the world and not let science dictate how they will live their lives, but prove that through love, faith, and determination, our kids will continue to test the very essence of what they are thought to be. We do not have a crystal ball, we do not know their future, if any of us could have one wish come true, it would be to know how their stories end. We will never know, so for now, it is about giving our special kids the chance to live a life that makes them happy. Others will try to tell us how to raise our kids and when we are stared at, or judged, or God forbid, our kids are judged, it will make us stronger. It will grow our hearts bigger and our arms longer and we will embrace the miracles that God gave us and believe in ourselves that we are doing everything possible to raise these special kids.
Each of us came together as we received the answer we were looking for and I will remember the day I found the most special mother’s that I have ever met. It was one of the saddest days of my life and yet it was the most joyous for I found out we were not alone, and we were all in this together.
Happy Mother’s Day to the strongest, kindest and most loving mothers I am blessed to call friends.